Give Comfort this Christmas

for ALD Life

£355.00 + £57.50 Gift Aid = £412.50
Donated to Give Comfort this Christmas’s £1000.00 Goal
9
Donations

The ALD Life Support Service Team are an invaluable source of information, advice, advocacy and financial assistance for those affected by ALD and AMN. Over the years they have been integral in supporting numerous individuals and families lost in the devastation of a new diagnosis, disease progression or bereavement, delivering our tailored packages of support and developing comprehensive information for sufferers and medical professionals.

One family's quote sums up how our support impacts our beneficiaries “We would be lost without ALD Life”.

Can you help us maintain these vital services? Christmas can be a particularly difficult time of year for our beneficiaries, so please help us today and give comfort to those with ALD and AMN this Christmas.

Take a look at our Case Studies for some real insight into our work and those we support.


The charity

ALD Life supports sufferers of adrenoleukodystrophy (ALD) and adrenomyeloneuropathy (AMN) and was set up by Sara Hunt, a single mum of two sons diagnosed with adrenoleukodystrophy (ALD), in 2004. ALD is a rare, terminal genetic brain disorder affecting apparently normal and healthy males aged 4 to 60, causing complete loss of function and death usually within a year of diagnosis. AMN, also caused by the ALD gene, causes debilitating mobility problems of varying degrees for both adult males and females.

ALD Life offers practical, emotional and financial support for families worldwide, promotes and assists in the development of meaningful research, provides an advisory service for new and existing diagnoses, education for medical professionals, schools and social services and advice on best practice within the NHS. It is also dedicated to introducing new born screening to the UK and the development of comprehensive treatment pathways for all sufferers.

One of our most successful events is our Community Weekend bringing geographically isolated ALD and AMN sufferers together to support and advise each other as well as have a weekend away from the rigours of dealing with the devastation an ALD diagnosis brings. The event also provides an opportunity for doctors, researchers and scientists to update the community and develop ideas together.

Registered charity (no. 1106008).

Find out more about ALD Life

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