ALD Life

Registered Charity Number 1106008

Total raised
£1160.00 + £81.25 Gift Aid = £1241.25
+ £0.00 Gift Aid
+ £81.25 Gift Aid

About ALD Life

ALD Life supports sufferers of adrenoleukodystrophy (ALD) and adrenomyeloneuropathy (AMN) and was set up by Sara Hunt, a single mum of two sons diagnosed with adrenoleukodystrophy (ALD), in 2004. ALD is a rare, terminal genetic brain disorder affecting apparently normal and healthy males aged 4 to 60, causing complete loss of function and death usually within a year of diagnosis. AMN, also caused by the ALD gene, causes debilitating mobility problems of varying degrees for both adult males and females.

ALD Life offers practical, emotional and financial support for families worldwide, promotes and assists in the development of meaningful research, provides an advisory service for new and existing diagnoses, education for medical professionals, schools and social services and advice on best practice within the NHS. It is also dedicated to introducing new born screening to the UK and the development of comprehensive treatment pathways for all sufferers.

One of our most successful events is our Community Weekend bringing geographically isolated ALD and AMN sufferers together to support and advise each other as well as have a weekend away from the rigours of dealing with the devastation an ALD diagnosis brings. The event also provides an opportunity for doctors, researchers and scientists to update the community and develop ideas together.

Get fundraising!

If you'd like to run, swim, bake (or do anything else to raise some money), click the button below to get started. It's quick and easy to register and by doing so here at, you can be sure that every penny raised will reach ALD Life.

Current appeals

Our wonderful partners

Our wonderful partners - who support us with cash and services - make it possible for us to pass EVERY PENNY raised from your fundraising efforts and generous donations to our charities, including Gift Aid. Of course, we would be unable to do so without them.

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What makes us wonderful?

We recognise the selfless commitment made by fundraisers who train for months to run marathons, face their fears by jumping out of aeroplanes or open their homes to the community for charity bakes and coffee mornings. We believe the charities they support should receive EVERY PENNY from their fundraising efforts.

We also believe that Gift Aid (a scheme enabling charities to reclaim tax on donations made by UK taxpayers) should be directed IN FULL to the charities. This is why the Wonderful Organisation does not generate profit (or even cover costs) by deducting money from fundraisers' sponsors or Gift Aid contributions.

We are a non-profit organisation funded entirely by like-minded, philanthropic businesses. That's what makes us wonderful!

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Registered in England & Wales • Company Incorporation No: 9818383

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