ALD Life

Registered Charity Number 1106008

Total raised
£1305.00 + £117.50 Gift Aid = £1422.50
+ £0.00 Gift Aid
+ £117.50 Gift Aid

About ALD Life

ALD Life supports sufferers of adrenoleukodystrophy (ALD) and adrenomyeloneuropathy (AMN) and was set up by Sara Hunt, a single mum of two sons diagnosed with adrenoleukodystrophy (ALD), in 2004. ALD is a rare, terminal genetic brain disorder affecting apparently normal and healthy males aged 4 to 60, causing complete loss of function and death usually within a year of diagnosis. AMN, also caused by the ALD gene, causes debilitating mobility problems of varying degrees for both adult males and females.

ALD Life offers practical, emotional and financial support for families worldwide, promotes and assists in the development of meaningful research, provides an advisory service for new and existing diagnoses, education for medical professionals, schools and social services and advice on best practice within the NHS. It is also dedicated to introducing new born screening to the UK and the development of comprehensive treatment pathways for all sufferers.

One of our most successful events is our Community Weekend bringing geographically isolated ALD and AMN sufferers together to support and advise each other as well as have a weekend away from the rigours of dealing with the devastation an ALD diagnosis brings. The event also provides an opportunity for doctors, researchers and scientists to update the community and develop ideas together.

Get fundraising!

If you'd like to run, swim, bake (or do anything else to raise some money), click the button below to get started. It's quick and easy to register and by doing so here at, you can be sure that every penny raised will reach ALD Life.

Current appeals

Main partner

The Co-operative Bank are proud to be the main sponsorship partner of the Wonderful Organisation supporting charities to make a difference by ensuring 100% of donations go directly to doing good. Learn more about the Bank’s values and ethics.

Corporate sponsors

Our Sponsors support the platform in kind by providing access to commercial and professional services on a pro-bono basis; through staff secondment and access to volunteers; or by making financial contributions to cover our operating costs.

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What makes us wonderful?

We recognise the selfless commitment made by fundraisers who train for months to run marathons, face their fears by jumping out of aeroplanes or open their homes to the community for charity bakes and coffee mornings. We believe the charities they support should receive EVERY PENNY from their fundraising efforts.

We also believe that Gift Aid (a scheme enabling charities to reclaim tax on donations made by UK taxpayers) should be directed IN FULL to the charities. This is why the Wonderful Organisation does not generate profit (or even cover costs) by deducting money from fundraisers' sponsors or Gift Aid contributions.

We are a non-profit organisation funded entirely by like-minded, philanthropic businesses. That's what makes us wonderful!

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