AGSD-UK supports adults and children across the UK who are living with any one of twelve ultra-rare glycogen storage diseases. These conditions can be extremely disabling and in some cases, fatal if not diagnosed and treated at their early stages. Sadly, because they are rare in nature they are not widely understood and known about, even within the health-care community and this often means that diagnosis is very late which can result in life changing deficiencies in the liver, heart, kidneys and muscles. AGSD-UK seeks to build a greater awareness within the health-care community whilst continuing to offer patient and family support, advice on managing symptoms and support for new research.
If you'd like to run, swim, bake (or do anything else to raise some money), click the button below to get started. It's quick and easy to register and by doing so here at Wonderful.org, you can be sure that every penny raised will reach Association For Glycogen Storage Disease UK.
We recognise the selfless commitment made by fundraisers who train for months to run marathons, face their fears by jumping out of aeroplanes or open their homes to the community for charity bakes and coffee mornings. We believe the charities they support should receive EVERY PENNY from their fundraising efforts.
We also believe that Gift Aid (a scheme enabling charities to reclaim tax on donations made by UK taxpayers) should be directed IN FULL to the charities. This is why the Wonderful Organisation does not generate profit (or even cover costs) by deducting money from fundraisers' sponsors or Gift Aid contributions.
We are a non-profit organisation funded entirely by like-minded, philanthropic businesses. That's what makes us wonderful!