Imagine dots flickering throughout your vision. 24/7. Without a cure.
This is the reality for thousands of people across the globe who suffer from Visual Snow Syndrome.
Visual Snow Syndrome is a rare but devastating neurological condition that can affect an individual’s vision, hearing, and cognitive functioning. As its name suggests, the condition’s hallmark symptom is ‘visual snow’. It’s like seeing the world through a film of static or snow similar to that seen on badly-tuned television. But it gets worse – the visual snow usually comes with a whole host of other (often worse) symptoms. Please visit our website (www.visualsnowsyndrome.com), which contains graphics and pictures of the various symptoms, to learn more.
Currently very little is known about Visual Snow Syndrome, and there is no cure for the condition. Many people live in fear of the condition for years, anxious and utterly confused as to what is happening to their vision. All of this is compounded by a lack of understanding from doctors and others, who are often unaware of the existence of the syndrome.
We therefore actively raise public awareness of Visual Snow Syndrome – mainly through our website – to help patients, friends, and family understand and come to terms with their symptoms. We also work to raise awareness specifically within the medical profession, where currently Visual Snow Syndrome has no official widespread recognition. We aspire to see a world where sufferers are given a clear diagnosis the very first time they seek medical help, rather than being left in the dark for years.
We see improving our understanding and awareness of Visual Snow Syndrome as just the first step. Step two is achieving the ultimate ambition – finding a treatment for a disease that has destroyed far too many lives. To this end, we proactively seek donations and undertake fundraisers, the money from which is applied directly to ground-breaking research into the condition.
If you'd like to run, swim, bake (or do anything else to raise some money), click the button below to get started. It's quick and easy to register and by doing so here at Wonderful.org, you can be sure that every penny raised will reach The Visual Snow Foundation.
We recognise the selfless commitment made by fundraisers who train for months to run marathons, face their fears by jumping out of aeroplanes or open their homes to the community for charity bakes and coffee mornings. We believe the charities they support should receive EVERY PENNY from their fundraising efforts.
We also believe that Gift Aid (a scheme enabling charities to reclaim tax on donations made by UK taxpayers) should be directed IN FULL to the charities. This is why the Wonderful Organisation does not generate profit (or even cover costs) by deducting money from fundraisers' sponsors or Gift Aid contributions.
We are a non-profit organisation funded entirely by like-minded, philanthropic businesses. That's what makes us wonderful!