Tourettes Action

Registered Charity Number 1003317

Total raised
£24681.61 + £4144.11 Gift Aid = £28825.72
+ £3525.61 Gift Aid
+ £618.50 Gift Aid

About Tourettes Action

Tourettes Action supports people living with Tourette Syndrome (TS) and their families

Get fundraising!

If you'd like to run, swim, bake (or do anything else to raise some money), click the button below to get started. It's quick and easy to register and by doing so here at, you can be sure that every penny raised will reach Tourettes Action.

Current fundraising pages

Researching Tourettes and Running for Tourettes!

My name is Marta and for the first time ever I have signed up to run a half marathon. I will run the London Landmarks Half Marathon on the 29th of March!I am a researcher and I have worked with children and adults with tic conditions, including Tourette Syndrome, over the past 4 years. I am undertaking this commitment in the aid of Tourettes Action. Tourettes Action highly value the work of researchers towards the understanding of tic conditions and improving support for those who live with them. My recent work has received invaluable support from the team at Tourettes Action and I am honoured to support them in return by running the half marathon.
I am hoping to: raise money to support Tourettes Action’s projectsemphasise the importance of research to improve support for those with tic conditionsraise interest in individuals with tic conditions who may want to contribute to my work by participating in researchHow can you support my cause? You can:sponsor my half marathon run in the aid of Tourettes Action – every donation is highly valuedshare my story with friends to help me reach out to many people who experience ticsif you experience tics, and you are interested in supporting research, contact me about participating in my project
You can access information about my project by visiting my Tourettes Action project page:
And by viewing my video:
Thank you for your support in whatever form it might be!

Marta Topor

  • Disability

London Marathon 2020

I am running the London Marathon for a wonderful charity that supports people and their families that are living with Tourettes Syndrome.
I am going to be undertaking a huge challenge for a non-runner by completing the London Marathon. The training has started and its tough and cold and wet and dark and everything else - but your donations and words of encouragement will keep me going and make it all worthwhile! Please read on to understand why I have chosen this charity.
I have Tourettes and some of you are aware of this, but to others you would never have known or believed me. Mainly because most people think Tourettes is shouting and swearing every 30 seconds, well its a lot more than that. I have 'tics' that are mainly around the face and shoulders, with the occasional verbal tic just like 90% of people who have TS. Since I was diagnosed with TS aged 11 I have told many people of my condition and it is usually greeted with 'no you haven't!' or 'but you don't shout swear words' or even 'let me walk through town with you and lets see peoples reaction'. All genuine responses.
I have for some time kept my condition from friends, employers and colleagues as I have tried to live with it and accept that the condition is not understood. It is becoming more common to see pupils in school with TS but again, it is hidden and they do not want to share that they live with TS. But I would like to help everybody understand what Tourettes is and be able to let children today not grow up feeling the way that I did, that is why I am supporting Tourettes Action. Please help where you can.
Thank you

Richard Ward

  • Disability
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We recognise the selfless commitment made by fundraisers who train for months to run marathons, face their fears by jumping out of aeroplanes or open their homes to the community for charity bakes and coffee mornings. We believe the charities they support should receive EVERY PENNY from their fundraising efforts.

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