Great North Run
Hi, thanks for looking at my fundraising page for Tourettes Action UK. I am running the Great North Run in September hoping to raise some funds for this charity.
I’m not only out to raise money but awareness too about the condition that is Tourettes Syndrome.
Tourettes Syndrome (TS) is a neurological disorder characterised by repetitive, stereotyped, involuntary movements and vocalisations called tics.
You may have seen news on Tourettes, watched programmes about it or even (as I have) laughed at YouTube videos of ‘Tourettes Boy’ trying to sing songs and struggle to contain his swearing.
The harsh reality of this syndrome isn’t to be laughed at though. My 12 year old nephew, Joshua, has struggled with Tourettes most of his life, the tics were noticed when he was 2 and an official diagnosis was given when he was 8. Joshua has a daily battle with motor tics and more recently vocal tics. This is escalated by abnormal situations, anxiety, stress and excitement.
When I spoke with Joshua about his TS, he described the need to
complete a tic in a certain way or a certain number of times in order to relieve the urge or decrease the sensation. Holding back the sensation to tic causes him pain and tiredness. A 12 year old boy will try and hold these back during social situations to avoid drawing attention to himself, you can imagine that the end of a school week is a huge relief to him.
If I can raise a small amount of money for Tourettes Action UK I will be pleased, if I can increase awareness of TS amongst friends and family to help people understand the pain Joshua goes through to try and lead a ‘normal’ life I will be more than happy.
I am doing this with the backing of Joshua and our family, I hope that taking time to read this has been informative and eye opening for you.