Tourettes Action

Registered Charity Number 1003317

Total raised
£13283.30 + £2284.50 Gift Aid = £15567.80
Fundraising
£10817.00
+ £2144.25 Gift Aid
Donations
£2466.30
+ £140.25 Gift Aid

About Tourettes Action

Tourettes Action supports people living with Tourette Syndrome (TS) and their families

Get fundraising!

If you'd like to run, swim, bake (or do anything else to raise some money), click the button below to get started. It's quick and easy to register and by doing so here at Wonderful.org, you can be sure that every penny raised will reach Tourettes Action.

Current fundraising pages

Bethan's #MoveForTourettes parkrun!

⭐ I'm a researcher in the MindTech research group at the University of Nottingham. I'm currently involved with the Online Remote Behavioural Intervention for Tics study (or ‘ORBIT’ for short) - this is a project testing out two new online programs for children with tics.
I’m also currently leading a new study looking at people’s experiences of using online communities/groups for Tourette syndrome and tics.
⭐ Tourette syndrome (or TS for short) is an inherited neurological condition. It affects one school child in every hundred and is more common amongst boys. Over 300,000 children and adults are living with TS in the UK.
⭐ Tourettes Action is the UK's leading charity supporting children with TS - and helps their families too.

Every June they run
#MoveForTourettes, a virtual event to support International TS Awareness Day on 7th June -

where people all over the world will be joining together to raise awareness of Tourette Syndrome!

⭐ On behalf of the ORBIT study team and as a big THANKS to Tourettes Action for all their help with ORBIT and our other projects,
I'm going to be participating in #MoveForTourettes at parkrun Beeston on Saturday 22nd June. I'll be wearing a green Tourettes Action vest, so watch out for me!
⭐ Please visit Tourettes Action for more information about #MoveForTourettes.
⭐For more information about our current research projects, please click here for more information about the ORBIT study, and click here for more information and to participate in an online survey about people’s experiences of using online communities/groups for their tics/Tourette syndrome.

Bethan Davies

  • Disability

Great North Run

Hi, thanks for looking at my fundraising page for Tourettes Action UK. I am running the Great North Run in September hoping to raise some funds for this charity.
I’m not only out to raise money but awareness too about the condition that is Tourettes Syndrome.
Tourettes Syndrome (TS) is a neurological disorder characterised by repetitive, stereotyped, involuntary movements and vocalisations called tics.
You may have seen news on Tourettes, watched programmes about it or even (as I have) laughed at YouTube videos of ‘Tourettes Boy’ trying to sing songs and struggle to contain his swearing.
The harsh reality of this syndrome isn’t to be laughed at though. My 12 year old nephew, Joshua, has struggled with Tourettes most of his life, the tics were noticed when he was 2 and an official diagnosis was given when he was 8. Joshua has a daily battle with motor tics and more recently vocal tics. This is escalated by abnormal situations, anxiety, stress and excitement.

When I spoke with Joshua about his TS, he described the need to
complete a tic in a certain way or a certain number of times in order to relieve the urge or decrease the sensation. Holding back the sensation to tic causes him pain and tiredness. A 12 year old boy will try and hold these back during social situations to avoid drawing attention to himself, you can imagine that the end of a school week is a huge relief to him.
If I can raise a small amount of money for Tourettes Action UK I will be pleased, if I can increase awareness of TS amongst friends and family to help people understand the pain Joshua goes through to try and lead a ‘normal’ life I will be more than happy.
I am doing this with the backing of Joshua and our family, I hope that taking time to read this has been informative and eye opening for you.
Thanks

Stu x

Stuart Haddow

  • Disability
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