Charlie is fundraising

Charlies Race To The Stones for PANS/PANDAS UK

£746.00 + £139.00 Gift Aid = £885.00
Donated to Charlie’s £2000.00 Goal

Charlie’s story

I’m raising money for PANS / PANDAS because of an amazing little girl called Charlotte, who has battled with this syndrome for the last 2/3 years, her ever supporting parents Sue and Ian who have worked tirelessly to support Charlotte and ensured that the charity has come to fruition. And for Emilia, Charlotte’s younger sister, who demonstrates a compassion and understanding far beyond her years.

Below is a little bit more about Charlotte.

Charlotte became extremely ill following what we assumed to be influenza in Year 2 aged 7. After being bedridden with a high temperature for 2 weeks in March '16 she completely changed overnight developing severe neurological symptoms. It took us almost 2 months to obtain a diagnosis for a condition many Doctors had simply not heard of. What we now know is that she had a type of immune-mediated encephalopathy - (inflammation of the brain) following infection.

She has endured countless blood tests, MRI’s, EEG’s, Lumbar Punctures and 4 Intravenous immunoglobulin infusions to correct her immune system and seen in excess of 20 Doctors. She is slowly recovering from her ordeal as the brain takes a long time to heal. However, there are many children who are simply not receiving timely and appropriate care to manage what is an extremely frightening condition for parents and children alike.’

All funds raised will be passed to the charity irrespective of whether my target is reached, not reached or exceeded.



PANS and PANDAS are a set of conditions which result in inflammation of the brain, causing a variety of neuro-psychiatric conditions such as OCD, tics and eating disorders. Please see our website for more information.

PANS PANDAS UK is a Charity which was established by a dedicated and determined group of parents with children who are affected by PANS or PANDAS in order to raise awareness and understanding of these conditions amongst the general public and medical professionals.  PANS PANDAS UK are working closely with a Network of Doctors in order to ensure better diagnosis and early effective treatment for those suffering with these little understood, but life changing conditions.

It is the mission of PANS PANDAS UK to ensure that these conditions are known about in every GP Surgery, every school and every hospital, so every child can receive an early diagnosis and effective treatment. 

Registered Charity Number: 1178484.

Find out more about PANS/PANDAS UK

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