Dylan is fundraising

Shaving for Tourette's for Tourettes Action

£350.00 + £55.00 Gift Aid = £405.00
Donated to Dylan’s £800.00 Goal

Dylan’s story

Tourette's Syndrome is a neurological condition which causes involuntarily movements and noises called tics. It usually comes with a lot of other conditions attached to it such as ADHD, depression, OCD, anxiety and autism.

Back in 2015 I went through a very dark period of my life. I was struggling with anxiety and depression to a point where I didn't want to live any more. This is where the first tic occurred. I've been living with this condition now for over 4 years.

What causes the onset of Tourette's Syndrome is not well understood. It's often conveyed as a chronic childhood condition however for myself my onset was at the age of 24. I had no tics as a child. Adult onset is not even something that is officially recognised in the diagnostic manuals. I, like many others, had to fight for a diagnosis because of a lack of understanding from doctors because of this age of onset and also because, at the time, my tics were not causing me to use inappropriate language or gestures. There is a big misconception around Tourette's Syndrome that it is all about swearing when it's only a minority of those with it who have coprolalia – obscene language.

However at the end of 2018 I was in the end diagnosed with Tourette's Syndrome. I had to fight for this diagnosis, a fight which Tourette's Action aided me in when things looked bleak, they gave me hope and advice that I could argue against my discharge from a neurological department at a hospital.

In that year since my diagnosis Tourette's Action selected me to participate in a exchange programme with 3 other countries to The Netherlands. A trip which has created memories that'll last me a life time as well as put me in contact with ticcers from these countries. Despite the short amount of time we have had to get to know each other, the level of understanding and empathy we've shown to each other I consider these people as friends. We all had a tremendous time and it was Tourette's Action who played a part in making it possible for the English young adults to come along to that European exchange.

So now I feel it is time to give something back.

I consider myself extremely lucky, I have an amazing ability to suppress my tics in public spaces for long periods of time. This is physically and mentally exhausting however not everyone with Tourette's has such an ability. People living with Tourette's Syndrome have often gotten verbally or physically abused, had misunderstandings with people of authority, including being arrested. Some have even taken their lives because of how difficult the reactions are to live with from members of the public and bodies of authority. Too often this is what makes this condition so disabling to live with. It's other people's presumptions and reactions of people who live with Tourette's Syndrome.

Society isn't built to accept difference. Campaigners like Tourette's Action have been breaking down barriers for people with disabilities for decades. This includes barriers in diagnosis, education, and employment. For this is continue we need to spread awareness and acceptance of conditions like Tourette's Syndrome.

To this end I've decided to do my part in raising awareness and acceptance and also fund raise for Tourette's Action to continue to fight for people like myself and to help them also have the good quality of life they so deserve.

All funds raised will be passed to the charity irrespective of whether my target is reached, not reached or exceeded.


Tourettes Action

Tourettes Action supports people living with Tourette Syndrome (TS) and their families

Registered Charity Number: 1003317.

Find out more about Tourettes Action

Recent sponsors

1 - 10 of 26

The way people come into your life when you need them, It's #wonderful and it happens in so many ways. – Stevie Ray Vaughan

Main partner

The Co-operative Bank are proud to be the main sponsorship partner of the Wonderful Organisation supporting charities to make a difference by ensuring 100% of donations go directly to doing good. Learn more about the Bank’s values and ethics.

Corporate sponsors

Our Sponsors support the platform in kind by providing access to commercial and professional services on a pro-bono basis; through staff secondment and access to volunteers; or by making financial contributions to cover our operating costs.

  • Powered by AWS Cloud Computing
  • Twilio logo
  • Whypay logo

What makes us wonderful?

We recognise the selfless commitment made by fundraisers who train for months to run marathons, face their fears by jumping out of aeroplanes or open their homes to the community for charity bakes and coffee mornings. We believe the charities they support should receive EVERY PENNY from their fundraising efforts.

We also believe that Gift Aid (a scheme enabling charities to reclaim tax on donations made by UK taxpayers) should be directed IN FULL to the charities. This is why the Wonderful Organisation does not generate profit (or even cover costs) by deducting money from fundraisers' sponsors or Gift Aid contributions.

We are a non-profit organisation funded entirely by like-minded, philanthropic businesses. That's what makes us wonderful!

Stay informed

The Wonderful Organisation will only use the information you provide on this form to send you regular newsletter updates via email.

Copyright 2016-2020 © Wonderful Organisation
A Non-Profit Company Limited by Guarantee

Registered in England & Wales • Company Incorporation No: 9818383

Email: [email protected]

Use of the Wonderful website constitutes acceptance of our Terms, Conditions and Policies.