Team F*CK GBS is fundraising

TEAM GBS 3 PEAKS CHALLENGE for Guillain-Barré & Associated Inflammatory Neuropathies (GAIN)

£2676.50 + £485.13 Gift Aid = £3161.63
Donated to Team F*CK GBS’s £2000.00 Goal
70
Sponsors

Team F*CK GBS’s story

My sister and I are doing the 3 Peaks Challenge in October for GBS which entails starting early in the morning and climbing Ben Nevis in Scotland, then driving to the Lake District and climbing Scafell Pike which will be at night with a head torch and lastly onto Snowdon in Wales. We aim to do this in 24 hours! This is approximately a marathon of climbing.


As most of you may already know its now a charity close to our hearts due to what has happened to my dad turning all our lives upside down. My dad was in Thailand when he got Guillain-Barre Syndrome. He was completely fine one day and the next it started to paralyse him completely starting from his feet all the way up to his eyes! It happened within 48 hours and it paralysed his breathing leaving him on a ventilator for 3 weeks and blind for 4 days. When he was out of a critical condition he was flown home by air ambulance to St Thomas hospital in London where he has been for over 2 months recovering and learning to walk again.


Im sure most of you are not aware of this awful condition as we were not either. Anyone, at any age or health can get it. We feel the awareness for the syndrome is quite frankly not good enough and we would like to help GAIN raise awareness and help them support other people who get GBS and their families.


So if it means climbing mountains and shouting from the top of them to achieve this then so be it!


Thank you for your support.


All funds raised will be passed to the charity irrespective of whether my target is reached, not reached or exceeded.


Updates


Guillain-Barré & Associated Inflammatory Neuropathies (GAIN)

Guillain-Barré syndrome is a rare autoimmune condition affecting the peripheral nervous system. It causes the nerves in the arms and legs to become inflamed and stop working, usually leading to rapidly ascending paralysis.


An estimated 1,300 people (1-2 people per 100,000) are affected by GBS annually in the UK with a further 650 people (1-2 per 200,000) being diagnosed with CIDP, which is a similar but longer-lasting condition which tends to progress more slowly, or may develop a remitting and relapsing pattern. 


About 80% of those with GBS will make a good recovery, but between 5-10% of people will not survive and the other 10-15% may experience long term residual effects ranging from limited mobility or dexterity, to life-long dependency on a wheelchair. GAIN is the only national organisation in the UK and Republic of Ireland dedicated to helping people affected by these conditions.


What we do:

•          Help people understand and manage GBS, CIDP and the associated variants

•          Promote and facilitate both clinical and non-clinical research

•          Raise awareness of the charity and conditions


GAIN receives no government funding, relying on the generosity of the public to support our work.

Registered Charity Number: 1154843.

Find out more about Guillain-Barré & Associated Inflammatory Neuropathies (GAIN)

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