This October, I am running the Manchester Marathon in aid of the Prader-Willi Syndrome Association UK. PWSAUK supports people and their families living with Prader-Willi Syndrome, a rare and complex genetic disorder.
I was inspired when I listened to a friend and colleague of mine on a podcast, talking about her 7 year old daughter, Isla, who has PWS. Sophie spoke with passion about her daughters character and how they have tackled their journey as a family to make sure Isla gets the most out of life every single day. As a family, they face difficulties together and always remain positive - especially Isla who wears the biggest and most beautiful smile on her face always!
The Prader-Willi Syndrome Association supports families just like theirs, being there every step of the way from diagnosis to seeking the best medical advice, applying for schools and specialist settings, applying for financial support to even researching the best residential options for adults. The charity also organises special events for people and their families to meet and socialise, as well as hosting conferences for families and professionals to come together to continuing learning and sharing experiences.
I am inspired by Isla, Sophie and their family. Their outlook and attitude towards life is one that everyone should share. We would all be so grateful for your support in raising awareness of PWS. Thank you!
All funds raised will be passed to the charity irrespective of whether my target is reached, not reached or exceeded.