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We are a registered UK charity that supports research to bring an end to the pain and suffering of children and adults with Neurofibromatosis Type 2 (NF2).
NF2 is very rare with under 2000 cases in the UK, it's a condition that causes tumours to grow in the brain and spine as well as elsewhere in the nervous system. As the tumours grow, they cause permenent and life changing damage.
Those affected have the condition from birth, NF2 is degenerative and a ticking time bomb.
We are a not for profit, patient led charity with all donations going directly to end NF2. Our board of trustees includes the lead specialist for NF2 in the UK Professor Gareth Evans.
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It would be wonderful to think that the future is uncertain and sort of surprising. Alan Rickman