Hugo’s story
On the 27th of June 39 colleagues from C. Hoare & Co. will be taking on a 18.4km hike with 1.5kms of accent in aid of Pitt Hopkins UK.
Pitt‑Hopkins syndrome is an ultra‑rare, lifelong genetic neurological condition that causes severe developmental delay, little or no speech, breathing abnormalities, epilepsy and complex medical needs, placing huge emotional and practical strain on families. Pitt Hopkins UK, a fantastic cause nominated by a colleague whose child suffers form the condition, is the only charity in the UK dedicated specifically to supporting children and adults with this condition. Run largely by parents, it connects families who would otherwise feel isolated, provides trusted medical information, raises awareness among healthcare professionals to improve diagnosis and care, and works to support future research into the life‑limiting breathing problems associated with the syndrome. Donations help ensure families are not left to face Pitt‑Hopkins alone and that hope, understanding and support continue to grow across the UK.
Fundraising Targets
All funds raised will be passed to the charity irrespective of whether my target is reached, not reached or exceeded.
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