Danielle’s story
Hi my name is Danielle. Myself and my brother Connor have decided to do a skydive to raise money for research into Pitt-Hopkins syndrome. My son Rio was diagnosed with Pitt-Hopkins 5 years ago, Pitt-Hopkins syndrome is an ultra rare genetic condition that affects a child's development and causes learning difficulties. It's so rare with an estimated 300 cases known in the uk. We would love to raise as much money as we possibly can to fund research into this syndrome as well as raise awareness. We will be participating in our skydive on Saturday 7th December (wish us luck)Thank you for taking the time to read our story. Danielle & Connor.
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