The Butterfly AVM Charity has greatly helped the lives of AVM sufferers and their families, by offering information and advice on who to turn to for help.The money raised is used to fund research. We help maximise results by not just donating, but by specifically employing researchers and PhD Students and paying for specific equipment that is vital to their work. Our amazing researchers work in conjunction with Great Ormond Street Hospital, University College of London, Royal Free Hospital and the Francis Crick Institute. Their aim is to breakdown the boundaries using cutting edge research and the provide the help that is needed to understand the genetic structure of AVMs and search for definitive treatments and one day the cure we long to find.We are very proud of this partnership. In-fact the researchers funded by this charity discovered the first genetic mutations that are responsible for AVMs!This is why we must continue to raise awareness and funding, so that we can continue to employ researchers in an attempt to fund further breakthrough’s with this disease.Our fundamental objective is to inform the general public about AVMs, and let them be inspired and moved by the stories of AVM sufferers. With readily available information we hope our charity website will help those living with an AVMs.
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I don’t want to make money. I just want to be wonderful. Marilyn Monroe