Sally’s story
Juliet was my mother's god daughter and the youngest of four children. She was kind, loving and much loved, born in 1970, married at 21 and four years later pregnant with her son Max. She had begun to tremble and was mis-diagnosed as having MS.
One year after Max was born, Juliet was diagnosed at the National Hospital for Neurology and Neuro-Surgery as having Nuclear Vertical Gaze Palsy.
Juliet has been an inspiration, courageous, with an infectious smile and an amazing singing voice.
Niemann-Pick is a rare, inherited disease that affects the body's ability to metabolize fat (cholesterol and lipids) with cells. These cells malfunction and over time, die. Niemann-Pick disease can affect the brain, nerves, liver, spleen, bone marrow and in severe cases the lungs.
Throughout Juliet's illness, she never stopped smiling. Her memory lives on through her husband Martin, her son Max and her family and friends.
Because Niemann-Pick is so rare, NPUK relies entirely on voluntary donations and fundraising to enable the team to continue supporting the children, adults, families and friends that are affected by Niemann-Pick disease.
I started running a the beginning of the first Lockdown ... the wrong side of 50. With my children continuing to inspire me and are now running with me and that coupled with your kind donations over the last 4 years have helped to raise over £1,800 for sufferers of this terrible degenerative illness, I am hoping to improve on 55:45 seconds to prove to my kids that I can ..and top £2,000 for this little known charity. My sons are somewhat faster both hoping to achieve BPs below 40min ...at the Oxford 10km Town & Gown on 11th May.
Fundraising Targets
All funds raised will be passed to the charity irrespective of whether my target is reached, not reached or exceeded.
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